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Happy World Down Syndrome Day!!!! Georgia Grace is the yummiest lump of sugar that I’ve ever come across!! I have no idea where we would all be without her-a miracle baby, at a miracle time-after such a harrowing season we had been through. I didn’t know her diagnosis until she was born (genetic scans came back with no concerns), and I’m so thankful I didn’t because I would have worried for months on end. She is the biggest blessing to every single person that gets to experience her magic-even in the grocery checkout line! We love her endlessly, and the entire precious-beyond-precious person in the Down Syndrome community ❤️ 3 is magic on her, the zoo carousel was her favorite thing she did on this special day! Hopefully you have had the chance to love one of these very special people with the purest and most beautiful hearts in the whole wide world, if we could only be more like them each and every day… #worlddownsyndromeday #downsydromelove
Three weeks later (and still sending out a few Christmas card stragglers because they are too adorable to be thrown away)…
Our holiday diet was modeled after Will Ferrell’s character in “Elf”, sugar cookies for breakfast, m&m bowls everywhere (easier than cutting more strawberries) and maple syrup on everything. I’m tired of meal prep so it worked out for a bit 😂 Precious memories were made with this wild and yummy crew, and we were so thankful for all of the hours alongside the ones that we hold nearest and dearest. I hope your holiday was shrouded with peace, laughter, love and joy-and somehow, someway the everlasting miracle of baby Jesus showed itself for you ❤️ Let’s all remember that if our home still looks like a no entry disaster zone, then that means it’s bursting and bustling with life! Therefore we are the absolute luckiest for one more year, together….
I am so thankful to be alive, to be spending Thanksgiving in the comforts of a home and not in a hospital, or on the streets. I adore these children beyond words, I am so thankful for each one of them. That I have the physical ability to take care of them. For our caboose Georgia, for her Down syndrome that has already felt like a precious gift of love beyond what I ever knew of love. I am thankful for every hour, every day that is gifted, that bittersweet awareness which I was only enlightened to after the tragedy of my sister dying so young in 2020. I am deeply thankful that my mom’s cancer has been under control for over 6 years now, and that my children can know her, and my father, and Chris’s parents. I am very thankful for the ordinary days and quiet, mundane, humdrum moments of parenting and family life. Because it means we are not navigating some impossibly hard circumstance in those hours, what a lovely thing. I am so thankful that the sun rises every single morning, and sets at nightfall, a rhythm from God that provides us a bit of clockwork, a bit of knowing and assuredness when all else might be failing. I am so thankful for silence, on the rare occasions I can locate it while the children are sleeping. I am thankful for music, and art, good words and good food. I am thankful for the possibilities of each day, each season, and the hope that accompanies that in the natural sense, whether we think it’s there or not. I am so thankful for my husband Chris, for much better years we are spending than prior ones. I am thankful to be loved by friends and family and Jesus and my dog. I am deeply thankful for my health, after a double mastectomy and c word scare a year ago. I am thankful for modern day medicine to accompany Georgia’s type 1 diabetes, and for hot baths to let the dust settle every evening. I am thankful for support systems doing life with us in many different forms of work and littles, and for laundry help when I think I might die in the pile. If you are reading this, we are among the luckiest. Wishing you the happiest Thanksgiving, with the yummiest mashed potatoes and chocolate chip pecan pies, from our household to yours ❤️
I’m living in a war with time
I can still reach out and touch you
And I wish I didn’t know the things I know
I’m standing in an open door
None of it was overrated and I’m
Never gonna wanna let you go…
@brandicarlile your newest masterpiece “War With Time” has absolutely wrecked me. This awareness you speak of is the most quietly painful part of parenting (and loving those closest to us) for me-in the beautiful, in the impossible, in the exhaustion, in the chaos-we are in fact always in a war with time, our most sacred gift. Thank you for this work of art and EVERYONE reading must stop what you are doing and listen!!! The greatest living female vocalist has served us up another one of her brilliant songs…
Y’all the children are 11,9.5 (don’t miss the half or you will be screamed at), 8 and 3. Georgia Grace is doing so good, she is the only Down syndrome child in her preschool class and it is just the happiest and most edible, precious group of littles! Her Type 1 diabetes has been quite the journey but I only allow myself to take it hour by hour, day by day. Like anything that feels incredibly hard, I have to put my worries on the “shelf section” of my brain and only commit to the mercy and beauty, hope and possibility that another new day offers. I really believe it’s the only way to live, is in the right here and right now of the present hour given to us. Y’all watch @colemantime playing tonight on the @cma with @chrisstapleton and @mirandalambert!!! And we will be @opry tomorrow night featuring the most FUN surprise guest ever if anyone wants to score some last minute tickets online!!! Can y’all believe it’s almost Thanksgiving, it feels that all I’ve done for a month is cut strawberries and match up socks, the absolute worst job of motherhood. Excited to sing a few tunes tomorrow night!! Sending so much love to you all ❤️❤️❤️
Hope y’all all had a ball lastnight!!! Good Lord I will miss these years, truly, where they still get excited for family trick or treat. Mine are forced to hang with me as long as I’m physically able to dress up. They know the rules! It’s one of the happiest nights of the year no matter the chaos or grandma sprinting down a street chasing a cupcake running wild, while breaking up a fight between Elle Woods, Arlo the army man, and Rey from Star Wars. Bob Ross paints peacefully by the trees, per usual (just kidding @colemantime you are part of the essential survival parenting kit each Halloween-when you’re not day dreaming about the color of the clouds on your next beautiful work of @chriscolemanart 😂) I’m sad it’s over. We had a ball. Honestly fighting was minimal and joy was abound, once everyone was finally dressed and approving of their accessories (this crew is VERY opinionated) 😂 I’ve eaten 14 mini size snickers and it’s only 9:25. Their brains are exploding on sugar. I have announced a candy bag cut off for all of us. Chris is manning the ring while I escaped to the backyard for peace to post these pics. Next I’m forcing them to frolic in the leaves. Which one of these is your fave?? Elf year is hard to beat on adorable levels! Can y’all believe it’s November 1st. Jesus take the wheel ❤️
The summer of 10,9,8 and 2 was full of sleep ins and travels and waterparks and “I’m bored!!” raging fighting marathons combined with sibling giggles and overzealous screams for roller coasters- and ice cream and family and Dallas and Fairhope and Nashville and sunsets and concerts by Coldplay and granddaddy and Tim McGraw and Dude Perfect and Opry nights playing with my main man! There were over 1,590 estimated strawberries cut by yours truly and my lifesaving husband and mama and family and besties and ride or die nanny Nicole (not a live in like the Parent Trap very unfortunately 😂) who is the only reason I’m still standing and breathing and the children are all living-since they require 24/7 intense emotional, physical and spiritual care on a level I have never experienced while explaining in great detail every physical ailment that pops up per day, including maximum ear/elbow/eyebrow itching complaints everynight when I think we are finallyyyyy done with bedtime!! We also made it through some medical journeys with family that ended up in a good place so that is always a huge relief. It was our first summer managing type 1 diabetes with Miss Georgia and my empathy levels for any parents monitoring 24-7 blood sugars, or any diagnosis for that matter, is on a whole new level! Y’all are holy legends sustained by Jesus, it’s another full time job! Our days were somewhere between endless and exhausting and wild and wonderful, completely free of tragedy (which is never ever taken for granted ) and overflowing with the ones I cherish the most. Grateful is much too cheap a word in this climate of beyond gut wrenching news on the regular. 10 years from today no one will even be in the house with us anymore except for our angel Georgia, so I’m soakjng it up on repeat and taking every 10 minute surprise snooze I can. I hope your summer was full of beauty and peace and joy and most importantly very light on your shoulders ❤️❤️❤️
